Anal Cancer Patient Registry Hub

Aim

Build a trusted, centralized Anal Cancer Patient & Family Hub for people affected by anal cancer.

I founded HPV Cancers Alliance after my own diagnosis and treatment for anal cancer showed me how difficult and isolating this disease can be. I knew that patients and families needed a place where they could find trusted information, meaningful resources, and, most importantly, feel heard. Together with our team of patient advocates, public health professionals, and medical experts, we are building an Anal Cancer Patient & Family Hub that brings these needs together in one place. At the heart of the Hub will be a patient-informed registry, allowing us to learn directly from patients about their treatment experiences, quality of life, challenges, and unmet needs. Funds raised will help us build the Hub, develop the registry, engage patients nationwide, and create resources shaped by what the community tells us. Our vision is simple: no one facing anal cancer should have to navigate it alone.

Funding method

Keep what you raise – this project will receive all pledges made by 9th November 2026 at 2:36am CST